Our trip to LA, Hollywood: April 30, 2022 at the Arena-Cenelounge-Sunset Sarcoidosis Awareness in Hollywood, Ca.
Andrena Senola Johnson, the premiere sarcoidosis documentary was awesome. It was very educational, heartfelt, and put a face on this awful disease that affects many, especially listening to those featured who suffers with it. Job well done! Others will be able to view it soon so stay tuned! #PurpleProject https://www.facebook.com/Sarcoidawarenessfilm/videos/3260558387506873/
Sarcoidosis (sar-‘koi-do’-sis) is a multi system disorder of unknown origin that predominantly affects the lungs and intrathoracic lymph nodes. Sarcoidosis is a total body disease and can attack all of the organs in the body including the lungs, heart, skin, liver, eyes, brain, spleen, kidneys and nervous system, and can be fatal. The cause is unknown; however, researchers believe genetics and/or environmental factors may play a role in the development of the disease. You cannot catch Sarcoidosis from someone who has it, nor is it a form of Cancer. (www.nhlbi.nih.gov/sarcoidosis)
Janine's children;: Morgan and Brandon
Janine Sarcoidosis Outreach Foundation is a leading non- profit (501 c3 tax exempt entity) education and outreach organization. Founded in 2003, the foundation works to educate the public, health care practitioners, media, and government agencies on the health issues of Sarcoidosis and a need for public awareness, patient resources, and more research into a cause and cure.
This is Houston online “Group Meet” link since COVID.
Our physical meeting place is West Houston Medical Center We also meet on zoom since COVID. Next zoom meeting is February 26, 2022. Link to Zoom meeting is on the Group Meet Link.
You're invited to my new group 'Houston Sarcoidosis Support Group Text' on GroupMe. You're invited to my new group 'Houston Sarcoidosis Support Group Text' on GroupMe. Click here to join: https://groupme.com/join_group/69218588/AT8wUkyc
Amazon charity link for purchases. Same Amazon. If you shop at amazon use smile.amazon.com
Use charity Janine’s Sarcoidosis outreach foundation. They will donate a 5% of your order to JSOF. Shop AmazonSmile.com! Support JSOF! AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the purchase price of eligible products to JSOF.
Museum/ Menil Collection
1533 Sul Ross Street, Houston, TX 77006
Lunch with Goode Company Barbeque
5109 Kirby Drive, Houston, TX 77098
RSVP via TEXT to Sharon at 832 - 453 - 7185
Accepting Your Chronic Illness Book Review/ Take This Cup by Trisel Davis
Zoom Meeting ID: 769 7283 0965
SARCOIDOSIS Church Visit
The Fountain of Praise
13950 Hillcroft Ave, Houston, TX 77085
(Please meet in the lobby at 9:30am dressed in purple).
Lunch with Whisky Cake Kitchen & Bar
12575 Southwest Freeway Stafford, TX 77477
Lunch Reservation is 12:30PM
Los Angeles Trip
Project Purple Premiere is April 30th.
Project Purple Premiere
(click below for more information)
There is a lot of information on the world-wide web since my daughter’s diagnosis in 1999. Sarcoidosis Support Groups can be found throughout the US and abroad. Research is taking place at the Cleveland Clinic, Vanderbilt Medical University, the Mayo Clinic, National Institutes of Health, National Jewish Research Center, Albany Medical College, just to name a few. Research is showing promise, but still a long way to go for a Sarcoidosis cause and possible cure.
Janine Sarcoidosis Outreach Foundation(JSOF) P.O. BOX 11008
ALIEF , TX 77411-1008
Phone: +01 832-248-6621
Shine a Light on Sarcoidosis!
April 14 and 15, 2019 is approved for Houston, Texas City Hall and the Houston Montrose bridges of Hwy 59 to Illuminate the Night in PURPLE!
April 13, 14, and 15th, Texas Medical Center Waterfall will be illuminated in PURPLE as well for World Sarcoidosis Awareness Day, April 13, 2019. “Shine a Light on Sarcoidosis!"
The Bernie Mac Foundation
Lambda Zeta Chapter
National Women of Achievment, INC
JSOF would like to help you get the information you need and resources.
We would love to hear from you!